BGDO | Belgian Group of Digestive Oncology

  • Plein écran
  • Ecran large
  • Ecran étroit
  • Increase font size
  • Default font size
  • Decrease font size

DNET registry

E-mail Print PDF

dnetDNET registry

The Digestive Neuroendocrine Tumor registry is a registry to collect epidemiological and medicinal data of patients suffering from digestive neuro-endocrine tumours via an electronic database.

Digestive Neuro-Endocrine Tumours (DNET) are rare and imperfectly understood tumours. The estimated incidence is about 1-2 cases per 100,000 inhabitants and they constitute 2% of all gastrointestinal tumours. These neoplasms can modify amines and synthesize a variety of peptide hormones, which may lead to impressive clinical syndromes. These tumours are also characterized by a relatively slow tumour growth, but nevertheless have a malignant potential.

Diagnosis and treatment of these tumors have been significantly improved during the last decades. In Belgium, data are lacking regarding the epidemiology, current diagnostic and treatment practice. It was therefore felt that there was a need to collect data about the natural history, diagnosis, staging and treatment among the Belgian patient population.

The BGDO decided to promote the creation of a retrospective registry to offer physicians the possibility to create their own database of patients with DNET, and also to have a more general overview of the Belgian incidence of these rare neoplasms which may stimulate further research.

add a patient nowRegistry goals:

  • To have a better knowledge of the epidemiology of Digestive Neuroendocrine Tumors
  • To understand variations in treatment and treatment related outcomes
  • To assess efficacy of diagnostic techniques and therapeutic strategies
  • To monitor safety of new diagnostic approaches and therapies
  • To improve patient care through feedback of data by giving physicians guidance in diagnosis and treatment policy.

Methodology

The data capture of the registry is web-based. A scientific committee has been formed among BGDO members, and with the help of a database company, an interactive registry was created. The DNET registry is open to all members of the BGDO interested in and following patients with DNETs.

The scientific committee and the board of the BGDO strongly encourages all members of the BGDO to include new patients in order to reach the objectives of the registry.

This project cannot be a success without you, but also our partnership with the pharmaceutical companies, i.e. Ipsen, Novartis and Pfizer, which we want to thank also for their support. If you wish to participate to the DNET please contact the Clinical Study Coordinator of the BGDO Nathalie Verbist ( This e-mail address is being protected from spambots. You need JavaScript enabled to view it This e-mail address is being protected from spambots. You need JavaScript enabled to view it). She will help you and explain how to proceed.

Section 1

You are here: DNET Registry